Eliza O'Neill and 'Saving Eliza' campaign to appear on 'Today' - wistv.com - Columbia, South Carolina

Eliza O'Neill's story to appear Tuesday on 'Today' Show

(Source: gofundme.com/ElizaONeill) (Source: gofundme.com/ElizaONeill)

It was a year ago when the O'Neill family got the news that would alter their lives.

Doctors told Glenn and Cara O'Neill their daughter Eliza has a rare genetic disease and that she may not live to see adulthood.

Instead of giving up and preparing for the inevitable, the O'Neill family set their sites on a cure. Not only for their daughter but for other children afflicted with Sanfilippo Syndrome.

Sanfilippo Syndrome is a rare genetic disease. It's a degenerative condition that causes  developmental delays, followed by deteriorating mental status.

Since Glenn and Cara got the news about Eliza, they are on a mission to raise $2 million to fund a clinical trail to help find a cure for Sanfilippo Syndrome.

And now they are half way there thanks to the kindness of others. The "Saving Eliza" GoFundMe site has since raised nearly $1 million to keep Eliza alive.

"This amazing story that has evolved out of your kindness, is your story as much as it is ours," Glenn said on the "Saving Eliza" GoFundMe page. "There would be no story without what has happened right here on this site. We are in this together. Thank you for continuing with us."

The O'Neill family is scheduled to appear on the Today Show on Tuesday morning between 8 a.m. and 8:30 a.m.

"This Father's Day weekend we give thanks to be able to spend it with our two beautiful children, Beckham & Eliza," Glenn said. "We dream of many many more to come with both of them. The treatment is within her reach, the finish line in sight, and we press on to this goal."

For more on how to help Eliza, go to www.gofundme.com/ElizaONeill.

Follow WIS:    

Copyright 2014 WIS. All rights reserved.

Powered by Frankly