Filmmaker debuts video to help family find a cure for 4-year-old with rare disorder

COLUMBIA, SC (WIS) - Three weeks ago, a Canadian filmmaker met 4-year-old Eliza O'Neill.

Eliza was diagnosed with Sanfilippo Syndrome Type A, a rare disorder that can have a life expectancy in the teens.

"I flew over from the other side of the world to help these strangers make a hopefully viral video to help save their daughter," said  Ben Von Wong. "This is the result of the most emotionally charged week I've had of giving myself the responsibility to save a life."

Von Wong made the video with the O'Neill family to help their movement go viral and to help save Eliza's life.

"I hope that I've managed to make something that will touch people's hearts and move them to action," he added. "I hope that what I did here will not just make a difference... but THE difference. I've done all that I can, and now it's your turn."

On Friday, the Beta Club at Ridge View High School will host a Zumba dance benefit from 6 p.m. to midnight. Tickets are $5 and proceeds will go toward the Cure Sanfilippo Foundation.

Ridge View High School is located at 4801 Hard Scrabble Rd.

For more information on how to help or to make a donation, visit

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